Sonia's Echocardiogram - a Medical Update

Tom here - I'm actually talking about things that I know nothing about (if you ask my kids, they'd say that happens a lot.) But seriously, here's an update from one of the pediatric cardiologists in the states who has reviewed Sonia's medical records, in particular, her echocardiogram. Here's what he had to say:

  • The echocardiogram was not normal. She has a ventricular septal defect which will likely require surgery.
  • He requested that I update all of our supporters and change things on the blog to show not that she had a normal echocardiogram but that she has "a ventricular septal defect....possibly an atrioventricular canal defect.
  • He also said that ventricular septal defects can be fixed.

So, where are things at? A couple of things to update you:

  • If you read the post that I put up last night from Susan, Sonia had a bad day yesterday. I talked to Dixie this morning and I think you could describe what she said about Sonia as that she was "less unstable" this morning (my words not hers). So that's heading in the right direction.
  • As Dixie wrote yesterday, they are working very hard in Haiti to not only keep Sonia alive but also get all of the records, paperwork and such ready for the medical visa as quickly as possible.

Where are things at stateside? We are talking to a number of medical facilities. The "main ones" that have expressed interest in reviewing medical records and talking further are:

  • Emmanuel Children's Hospital - Portland Oregon
  • Mayo Clinic - Rochester Minnesota
  • MUSC Children's Hospital in Charleston SC
  • St. Louis Children's Hospital - St. Louis MO
  • Miami Children's Hospital - Miami FL
  • Peyton Manning Children's Hospital/St. Vincents - Indianapolis IN

I would like to ask that you respectfully to refrain from contacting any of these facilities as we are already having discussions with the appropriate people at those organizations. Does that make sense?

At this point, we don't have a final commitment from any of the medical facilities that we need, so we are, due to the fragile nature of Sonia's health, pursuing all options at the same time. It's not an overstatement to say that her life might depend on our pursuing all of these and any more at the same time. As soon as we do have a final commitment, trust me, you'll hear it from me. :-)

So what can you do?

  • Pray for Sonia, Susan and Dixie that Sonia can fight off the infection that is making her health so precarious right now and that Susan and Dixie would have the knowledge and energy to be able to make the right decisions for her care.
  • Pray for Magaly, Melissa and the others who are working on finding the birth parents ID and getting the visa documents compiled as quickly as possible that it would all fall together quickly.
  • Pray specifically for the organizations mentioned above that the people who make decisions at these institutions would clear the way for her to come to the states.
  • Pray that the option of a private plane to transport her will open up. We are currently talking to two organizations about that possibility but nothing has been finalized. If you know anyone who might be able to help with that, please let me know.
  • If you know people at any children's hospitals other than the ones mentioned above, make a call and if there seems to be preliminary interest, get back to me and I can get them the records that they would need.

We will continue to pursue all options for healing and recovery here on earth until God grants healing, either here on earth or at home with Him. Until then, we must remain faithful in working on behalf of the "least of the least of this."

Stay tuned and we'll keep you informed.

On behalf of Sonia, Susan and Dixie, thank you for your prayers.


14 comments (Add your own)

1. Jill Monarch wrote:
I suggest also, Arkansas Children's Hospital - cardiac one of best, did our daughters heart surgery. Also, Arnold Palmer in Orlando, we live in Orlando and would provide housing, transportation anything needed. We are on staff with Campus Crusade for Christ here.

Fri, January 21, 2011 @ 10:45 AM

2. Jennfer Krodel wrote:
If Sonia ends up making it to the states and comes to Indianapolis I would be willing to help with whatever needs done. I own a company that provides services to individuals with disabilities. We have experience in working with kids and adults with Downs Syndrome. What a Blessing it would be to be able to help this little one! You are all in my prayers. jen

Fri, January 21, 2011 @ 11:12 AM

3. brenna wrote:
Tom, I have asked a dear friend to ask about Riley Children's hospital in Indianapolis, IN as well (Riley Hospital saved their childs life and they have doctor connections through Riley). Has anyone else contacted Riley Hospital with regards to helping possibly? My prayers and thoughts are with everyone. brenna

Fri, January 21, 2011 @ 11:12 AM

4. Jenny wrote:
We live on the northside of Indianapolis. We would be honored to help out in any way we can with Sonia if she comes to St. Vincent's.

Fri, January 21, 2011 @ 11:12 AM

5. Lisa Syler wrote:
I live in Nashville, TN., and do not know anyone specifically at Monroe Carrell Vanderbilt Children's Hospital (my daughter used to be a NICU nurse there), but they have done similar things in the past and I feel like they might be a good place to contact. 615-936-7233 is their number

Fri, January 21, 2011 @ 11:18 AM

6. Zamia Baerga wrote:
I will keep Sonia in my prayers, as well as you for your wonderful work. Zamia Baerga

Fri, January 21, 2011 @ 11:38 AM

7. Cathryn Peterson wrote:
I have contacted Geisinger Janet weis Childrens's hosptial in danville, PA and they will be getting back to me. could you please send us info on what we would need to host her so we can get that going if they say yes.

Fri, January 21, 2011 @ 11:43 AM

8. Jennifer wrote:
Still praying.....

Fri, January 21, 2011 @ 12:32 PM

9. Gretchen Thibaullt wrote:
By the way, we would have a host family in MN as well if Mayo cloes in-laws have done this many times.

Fri, January 21, 2011 @ 1:01 PM

10. Kim Hornak wrote:
Children's Hospital in Denver might also be an option for Sonia. I don't know anyone specifically but since my husband and I facilitate the Denver-Metro CHADD (children and adults with ADHD) organization, we might be able to use our medical contacts through those avenues to help. Let me know. Sounds like you've got a lot of good support already, but time is of the essence, too. Prays coming Sonia's way!!

Fri, January 21, 2011 @ 2:56 PM

11. Beth Yoder wrote:
I live in McMinnville, OR and would help in any way you need if she ends up at Emmanuel Children’s Hospital – Portland Oregon, it is about 1 hr away from us. We will continue to pray for all of you.

Fri, January 21, 2011 @ 3:20 PM

12. Robert Patterson wrote:
I have a connection with an organization called Agape Flights out of Venice, FL. They make weekly flights in/out of Haiti and the DR. I'll be on a flight with them Feb. 24-25. Please let me know if you think we may be able to help.

Fri, January 21, 2011 @ 5:57 PM

13. Rachel Domenic wrote:
Waiting for a call from Brenners Children's Hospital's director at Wake Forest Baptist University. If they are able to help, we are willing to provide housing and transportation for anyone who needed it. Our prayers are with you.

Fri, January 21, 2011 @ 10:08 PM

14. Freda wrote:
We are in prayer for Sonia. I too, have high recommendations for Monroe Carrell in Nashville, Tn.

Wed, January 26, 2011 @ 11:39 AM

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