Tom here - I'm actually talking about things that I know nothing about (if you ask my kids, they'd say that happens a lot.) But seriously, here's an update from one of the pediatric cardiologists in the states who has reviewed Sonia's medical records, in particular, her echocardiogram. Here's what he had to say:
- The echocardiogram was not normal. She has a ventricular septal defect which will likely require surgery.
- He requested that I update all of our supporters and change things on the blog to show not that she had a normal echocardiogram but that she has "a ventricular septal defect....possibly an atrioventricular canal defect.
- He also said that ventricular septal defects can be fixed.
So, where are things at? A couple of things to update you:
- If you read the post that I put up last night from Susan, Sonia had a bad day yesterday. I talked to Dixie this morning and I think you could describe what she said about Sonia as that she was "less unstable" this morning (my words not hers). So that's heading in the right direction.
- As Dixie wrote yesterday, they are working very hard in Haiti to not only keep Sonia alive but also get all of the records, paperwork and such ready for the medical visa as quickly as possible.
Where are things at stateside? We are talking to a number of medical facilities. The "main ones" that have expressed interest in reviewing medical records and talking further are:
- Emmanuel Children's Hospital - Portland Oregon
- Mayo Clinic - Rochester Minnesota
- MUSC Children's Hospital in Charleston SC
- St. Louis Children's Hospital - St. Louis MO
- Miami Children's Hospital - Miami FL
- Peyton Manning Children's Hospital/St. Vincents - Indianapolis IN
I would like to ask that you respectfully to refrain from contacting any of these facilities as we are already having discussions with the appropriate people at those organizations. Does that make sense?
At this point, we don't have a final commitment from any of the medical facilities that we need, so we are, due to the fragile nature of Sonia's health, pursuing all options at the same time. It's not an overstatement to say that her life might depend on our pursuing all of these and any more at the same time. As soon as we do have a final commitment, trust me, you'll hear it from me. :-)
So what can you do?
- Pray for Sonia, Susan and Dixie that Sonia can fight off the infection that is making her health so precarious right now and that Susan and Dixie would have the knowledge and energy to be able to make the right decisions for her care.
- Pray for Magaly, Melissa and the others who are working on finding the birth parents ID and getting the visa documents compiled as quickly as possible that it would all fall together quickly.
- Pray specifically for the organizations mentioned above that the people who make decisions at these institutions would clear the way for her to come to the states.
- Pray that the option of a private plane to transport her will open up. We are currently talking to two organizations about that possibility but nothing has been finalized. If you know anyone who might be able to help with that, please let me know.
- If you know people at any children's hospitals other than the ones mentioned above, make a call and if there seems to be preliminary interest, get back to me and I can get them the records that they would need.
We will continue to pursue all options for healing and recovery here on earth until God grants healing, either here on earth or at home with Him. Until then, we must remain faithful in working on behalf of the "least of the least of this."
Stay tuned and we'll keep you informed.
On behalf of Sonia, Susan and Dixie, thank you for your prayers.
Posted on Fri, January 21, 2011